Join us on Facebook:
Welcome to the Hepatitis Education Project
Whether you are a patient, a family member, a friend, a health care/service provider, or just someone who wants to know more about hepatitis or our organization, this site will provide you with information about the work we do and the issues facing hepatitis patients.
Hep C in the News
A lot of progress has been made during the last 12 months in the fight against hepatitis C (HCV). We've seen new recommendations that all baby boomers get tested for HCV; and two new drugs to treat HCV were approved by the FDA, with more on the way.
All these developments have caught the attention of the national media. Click on the articles below to read some of the latest news.
Hepatitis C: New Drug Treatment "is a breakthrough," BBC, April 2014 -- "A new treatment for hepatitis C "cured" 90% of patients with the infection in 12 weeks, scientists said..."
Drugmaker Studies Find a Bargain in $84,000 Medicine, Bloomberg, April 2014
"While the $84,000 price of Gilead Sciences Inc.’s Sovaldi has riled lawmakers and public health advocates, doctors say this new generation of hepatitis C drugs may actually help cut costs..."
Lawmakers Attack Cost of New Hep C Drug, New York Times, March 2014
Gilead Offers Egypt New Hepatitis C Drug at 99% Discount, Reuters, March 2014
How Much Should Hepatitis C Treatment Cost?, New York Times, March 2014
One in 100 Americans has Chronic Hepatitis C Infection, Reuters, March 2014
Could New Hepatitis C Drugs Bust State Budgets?, Pew/Stateline, March 2014
Progress Against Hepatitis C, A Sneaky Virus, New York Times, February 2014
FDA Approves Pill to Treat Hepatitis C, New York Times, December 2013
Hepatitis C, a Silent Killer, Meets its Match, New York Times, November 2013
HEP Launches National Hepatitis Corrections Network
On March 20th, HEP launched the National Hepatitis in Corrections Network. The inaugural meeting in Chicago brought together a diverse group of professionals who work on issues related to viral hepatitis in prisons and jails. Among the 15 attendees were correctional healthcare providers, legal and policy advocates, representatives from state agencies, and health educators. The goal of this new initiative is to create a space for collaboration and to streamline sharing of information and resources in order to increase our ability to advocate for viral hepatitis screening and care in our nation’s correctional institutions.
The launch meeting produced some fascinating conversations; some highlights included:
- Identifying, as a group, numerous barriers to HCV treatment and screening for prisoners
- Discussing best practices for HCV screening and treatment in correctional institutions, as well as for offender health education, and legal/policy advocacy
- Generating tangible action steps we can take as a network, the first of which will be to build a clearinghouse for up-to-date information and resources to be made available online for use by agencies, advocates, incarcerated patients, and their families
- Hearing excellent presentations from experts in their respective fields, including:
- Dr. Lara Strick, Infectious Disease Physician for Washington Department of Corrections
- Jack Beck, Attorney and Policy Advocate with The Correctional Association of New York
- Gabe Eber, Attorney with the ACLU National Prison Project
- Dr. Julie Lifshay, Health and Special Projects Manager, Centerforce
The Network is a re-incarnation of the National Hepatitis Prison Coalition, a project of the late Phyllis Beck, a longtime advocate for incarcerated hepatitis C patients. Based on our initial success, HEP believes the partnerships being formed via the network are a strong foundation for future collaboration that will create real change on issues related to hepatitis in corrections. For more information, please visit www.hcvinprison.org.
New Website Launched for Hep C for Patients, Medical Providers
In December, Boehringer Ingelheim launched a website, HepCRedefined.com, to help people with hepatitis C virus (HCV) infection. Created in collaboration with HCV community advocates and health care providers, the portal offers a range of interactive resources that can be shared via social media channels, embedded on other websites or viewed on various smart devices.
Michael Ninburg, executive director of the Hepatitis Education Project, contributed to the website. "The entire HCV community is in need of simple tools and resources to talk about the disease in an informed, supportive way," Ninburg said. "There is information about HCV across the web, but HepCRedefined.com is designed to aggregate straightforward and accurate information in a single, virtual destination."
Some of the tools available on the portal include:
- a comprehensive and interactive checklist to help patients manage the care and treatment of their condition;
- a key facts page on HCV mortality;
- at-a-glance information cards designed to debunk myths surrounding HCV; and
- a community "C-pledge," where patients, health care providers and caregivers can take an oath to redefine the experience of living with HCV and the way it is perceived.
You can view the site here: www.HepCRedefined.com
CDC Tells Baby Boomers To Get Tested For Hepatitis C
The CDC has released a final draft of recommendations on that all Americans born from 1945 through 1965 (“baby boomers”) get a one-time test for the hepatitis C virus. In the U.S, hepatitis C is the leading cause of liver transplants and liver cancer, and the fastest rising cause of cancer-related deaths. Persons born from 1945 through 1965 account for over 75% of adults infected with hepatitis C in the United States, and are five times more likely to be infected than other adults. Yet most do not know that they have the virus because hepatitis C can damage the liver for many years without noticeable symptoms. More than 15,000 Americans—mostly baby boomers—die each year from hepatitis C-related illness, such as cirrhosis and liver cancer, and deaths have been increasing steadily for over a decade. Read the final recommendations here.
For more information vist the CDC's Know More Hepatitis website where you can also take the Hepatitis Risk Assessment.